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Dravet syndrome is a genetic disorder which causes treatment resistant epilepsy and is often accompanied by speech and developmental delays. About 3,000 people are thought to have the condition in the UK. Current treatments aim to control the number and severity of seizures, but often do not work.

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"People love Pokémon for different reasons, but really kind of boils down to that you get comfort from it, it's enjoyable, it's just a bit of fun," she says.

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